What Is National Foundation Prescription Copay Assistance Review

RareCare^®

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial aid with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Read NORD's Coronavirus: Business Continuity Response for RareCare® patient assistance programs.

Other Resources

If NORD does not have a program for your affliction, you may find one through another provider. View More>

Assistance Programs

Cerebrotendinous Xanthomatosis (CTX) | Accepting Applications

Co-Pay Assist
Premium Assistance
Medical Assist
Phone: 844-810-1891
Email [electronic mail protected]
Fax: 203-349-8431

Cryopyrin Associated Periodic Syndromes (CAPS) | Closed

Co-Pay Assistance
Premium Aid Plan
Contact: 1-855-567-3801
Email:[email protected]
Fax: one-203-349-3278

Cushing's Syndrome | Accepting Applications

Medical Assist
Co-Pay Assistance
Premium Assistance
Contact: ane-855-864-4018
Electronic mail: [email protected]
Fax: 1-203-517-0978

Downbeat Nystagmus (EAP-001)

Clincial Trial Travel & Lodging
Contact: 1-877-805-0411
Email: [email protected]
Fax: 1-203-274-8700

Familial Cold Autoinflammatory Syndrome | Closed

Co-Pay Assistance
Premium Assistance Programme
Contact: 1-855-567-3801
Electronic mail:[email protected]
Fax: i-203-349-3278

Friedreich'southward Clutter (FA)

Clinical Trial Travel & Lodging
Contact: 844-566-2230
Email:[email protected]
Fax: 203-349-2046

Lennox-Gastaut Syndrome | Accepting Applications

Co-Pay Assist
Premium Help Plan
Contact: i-855-864-4028
Email: [email protected]
Fax: 1-203-614-1713

Morquio A Syndrome | Temporarily Waitlisting Patients

Medical Assistance
Co-Pay Assistance
Premium Assistance
Contact: ane-844-675-2354
Email: [email protected]
Fax: 1-203-349-3200

Muckle-Wells Syndrome | Closed

Co-Pay Assist
Premium Assistance Program
Contact:1-855-567-3801
Email:[email protected]
Fax: ane-203-349-3278

Neonatal Onset Multisystem Inflammatory Illness | Closed

Co-Pay Assistance
Premium Assistance Programme
Contact: ane-855-567-3801
Electronic mail:[electronic mail protected]
Fax: 1-203-349-3278

Periodic Paralysis | Accepting Applications

Co-Pay Assistance
Premium Assist
Medical Assist
Contact: 877-291-7756
Electronic mail:[email protected]
Fax: 203-586-0138

Short Bowel Syndrome | Closed

Co-Pay Help
Premium Assistance Program
Contact: 1-855-218-9877
Email: [electronic mail protected]
Fax: 203-429-8717

Tardive Dyskinesia | Closed

Premium assist
Copay assistance
Medical assistance
Contact: 877-291-7792
Email:[email protected]
Fax: 203-405-0825

Undiagnosed | Referral Required

Patients wishing to employ for assistance must be currently enrolled in the Undiagnosed Diseases Network (UDN). For more information nigh the UDN please see: https://undiagnosed.hms.harvard.edu

Zellweger Spectrum Disorders | Accepting Applications

Co-Pay Help
Premium Assist
Medical Assistance
Contact: 877-291-7805
Email: [email protected]
Fax number: 203-486-8803

Get Started

To apply for assistance you first need to locate the plan beneath by disease state. Then follow the related contact information. If you do non see a patient help program listed that meets your specific need, please contact us for more than information at: ane-800-999-6673.

NORD'due south Patient Services Representatives are available during the following hours:

Patients can contact NORD's Patient Services Representatives at 1-800-999-6673 during the following hours:

Mon-Thursday eight:thirty am – seven:00 pm EST

Friday 8:30am – 6:00pm EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

Are y'all eligible?

Eligibility criteria can vary by program but most of NORD's patient assistance programs require the following:

Does the patient take an applicable diagnosis or physician referral?
Does the patient currently alive in the United States?
Does the patient meet NORD's financial need criteria?

Maximum honour levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD is able to offer aforementioned twenty-four hour period approval for programs.

MedicAlert Help Plan

NORD and MedicAlert Foundation have teamed up on a new program to provide protection to rare disease patients in emergency situations.

NORD's MedicAlert® Aid Program provides eligible individuals with a MedicAlert production and 3 years of membership. Additionally, when someone purchases a new MedicAlert membership using the tracking lawmaking:NORD, MedicAlert will donate twenty% of the membership fees to NORD to farther our mission of providing intendance and resources for those living with rare disorders.

We look frontward to helping eligible rare patients participate in this supportive program. For more information and to apply, delight contact:[email protected] or 203.616.4325.

Discover Out More

Rare Disease Educational Back up Program

Ensuring that patients and caregivers are armed with the tools they need to alive their best lives while managing their rare condition is a vital part of NORD'south mission. Thanks to the generous support of Horizon Therapeutics, NORD is able to empower even more patients and caregivers through the Rare Illness Educational Support Plan.

This programme provides reimbursement for registration costs for rare affliction-specific educational offerings, as well every bit programs that support patients' health and well-existence, such as workshops, nutrition classes and conferences. In addition to assisting with registration fees, the Rare Disease Educational Support Program provides limited financial help to patients and caregivers for travel and lodging costs.

We await forrad to helping patients and families participate in a broad spectrum of rare educational programs. For more information and to apply, please contact: [email protected] or 860.556.2208.

Learn More

Rare Caregiver Respite Program

This first-of-its-kind assistance programme is designed for caregivers of a child or adult diagnosed with a rare disorder. NORD understands that caring for a loved one is a generous gift that demands significant amounts of fourth dimension, attending, patience and dedication.

The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or merely accept an afternoon or evening away from caregiving. Financial aid will exist granted up to $800 annually for those who qualify.

What intendance may be covered?

Registered Nurse (RN)
Licensed Practical Nurse (LPN)
Certified Nursing Assistant (CNA)
Domicile Health Adjutant (HHA)
Non-professional caregiver

Who is eligible?

The caregiver must be a United states of america citizen or permanent resident of the United states for at least six months with evidence of residency, and be willing to undergo a financial evaluation of demand to determine if they fall within the program's financial eligibility guidelines. Additionally, the patient for whom care is being provided must take a confirmed rare affliction diagnosis.

How exercise you apply?

Awards are granted on a get-go come, first served basis to eligible individuals. There is no fee to use. Contact a Patient Services Representative at 203.616.4328 or email[email protected].

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Source: https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/